Health Innovation Highlights: When Person-Centered Services Stop at My Mother's Nursing Home Door: Views from a Daughter and Champion of Person-Centered Care
In the Eldercare Voices column of Health Innovation Highlights, Associate Professor of health services administration, Dr. Lori Simon-Rusinowitz shares stories of her mother’s poor experience in a nursing home and gives insight on how we can expand person-centeredness care to residents of such facilities.
In the piece, Dr. Lori Simon-Rusinowitz details the culture change movement’s limited progress towards person-centered services in nursing homes. She urges adult children of aging parents to “convey outrage so that the right people pay attention.” She calls for nursing homes to “solicit and act upon consumer perspectives and feedback” and encourages her generation to “take advantage of our numbers, participate in consumer advocacy and insist that nursing homes do better.”
She adds that she and her mother “would both be thrilled if this discussion sparks fresh ideas, new partnerships and action that opens the door a bit wider to welcome person-centered care into more nursing homes.”
Dr. Lori Simon-Rusinowitz, is also a faculty member of the University of Maryland School of Public Health’s Center on Aging and has been a long-distance caregiver for eight years. From 1995-2012, Dr. Simon-Rusinowitz served as research director for the three-state Cash & Counseling Demonstration and Evaluation, the twelve-state Next Steps replication project, and the National Resource Center on Participant-Directed Services. These national programs involved designing, implementing and evaluating a participant-directed approach to personal care services for people of all ages with disabilities.
Health Innovation Highlights is produced by the Center for Consumer Engagement in Health Innovation.