Principal Investigator(s): Dr. Olivia Carter-Pokras
Sponsor: Patient-Centered Outcomes Research Institute (PCORI)

In 2016, Dr. Carter-Pokras was awarded a Patient-Centered Outcomes Research Institute (PCORI) grant titled, “The Patient Voice in Cultural Diversity Training for Patient Centered Outcomes Researchers.” Given the lack of systematic development and evaluation of curricula involving chronic pain patients and the need to improve pain care, the research team will be identifying approaches for including community stakeholders in cultural competency/health literacy training. This project aims to include chronic pain patients in designing and delivering a cultural competency/health literacy curriculum in an interprofessional setting for researchers examining patient-centered outcomes. The long-term objectives of this study are to improve the cultural competency/health literacy skills of researchers and to produce a curriculum that can be used by and inform other patient-centered outcomes research training programs.

Project Updates:

Phase 1- Update of literature (completed):

An updated literature review was performed on studies examining patients' role in health professional education. We were able to identify 10 articles about cultural diversity, pain and curriculum building within the literature (n=657) related to engaging patients in health professional education.

Phase 2- Focus groups for patients living with chronic pain (completed):

We conducted one focus group consisting of English-speaking patients living with chronic pain on December 7, 2016 in Kansas City, MO and another focus group consisting of Spanish-speaking patients living with chronic pain on January 18, 2017 in Wheaton, MD.

Phase 3- Face-to-face meeting on May 17th, 2017 in Pittsburgh (in progress)

A face-to-face working meeting will be convened on May 17, 2017 in Pittsburgh. We will be inviting patient representatives, chronic pain researchers, stakeholders and cultural competency/health literacy experts to interpret, discuss and evaluate findings from the literature review update and focus groups. During this meeting, we will identify key principles of engaging patients in designing the cultural diversity training.

For further details, the project summary can be accessed here.